Disrupting Racial and Ethnic Disparities 2.0: New Yorkers of Color Face Inequalities in Rx Costs and Many Other Areas

Disrupting Racial and Ethnic Disparities 2.0: New Yorkers of Color Face Inequalities in Rx Costs and Many Other Areas

Older New Yorkers of color are more threatened by gentrification, more likely to skip prescription medications because of cost, more burdened by utility bills and more financially squeezed by the responsibilities of family caregiving than older White New Yorkers.

That’s the takeaway from Disrupting Disparities 2.0, Solutions for New Yorkers Age 50+, the second phase of a multiyear initiative by AARP New York, the Asian American Federation, the Hispanic Federation, the NAACP of New York and the New York Urban League, examines disparities impacting New Yorkers of color 50+ in the areas of health, economic security and livability.

AARP and its partner groups released Disrupt Disparities 2.0, a conglomeration of research into gentrification, prescription drug affordability, and family caregiving and utility costs, at a media luncheon today at the Yale Club featuring Assembly Members Yu-Line Niou and Robert Rodriguez of Manhattan.

“Whether it’s housing, prescription drugs, utilities or caring for a loved one, older New Yorkers of color face longer odds when it comes to affordability and access,” said AARP New York State Director Beth Finkel. “We’ve made significant progress since we launched ‘Disrupt Disparities’ in 2018, but ‘Disrupt Disparities 2.0’ shows we need to do more to level the playing field so all New Yorkers have equal opportunities.”

“Most striking among the findings is the dearth of data about the Asian American community on key topics like housing, utilities and caregiving,” said Asian American Federation Executive Director Jo-Ann Yoo.

“The initial Disrupt Disparities reports drove significant changes in state policies that will improve the lives of New York’s Hispanic population,” said Hispanic Federation President & CEO Frankie Miranda. “Together with AARP, we are excited to build on those early successes through this new research and policy ideas.”

“As the heroes of the Civil Rights Movement showed us, progress comes – sometimes quickly and dramatically, but more often through tough, unglamorous, incremental policy work,” said NAACP New York President Hazel Dukes. “The time to get to work is long past, and we stand proudly with AARP to support New York’s 50+ people of color.”

“People of color 50 and older experience stark disparities across their health, homes and neighborhoods, particularly in New York’s urban centers,” said New York Urban League President Arva Rice. “We are proud of what this initiative has already accomplished, and look forward to implementing more policy changes to close the gaps and ensure equality for all, regardless of race or ethnicity.”

“While some progress has been made, we have much work to do to break the equity barriers that older adults who are black or of color face in health, economic security, and livability,” said Assembly Member Robert Rodriguez of East Harlem.

“The research conducted by AARP and its partner organizations documents the tremendous barriers facing our communities in affording basic needs like prescription drugs, housing, and utilities,” said Assemblymember Yuh-Line Niou. “It is incredibly important that we address the needs in our community. We need to continue focusing on collecting more in-depth data and translating the data into actionable policy and budgetary priorities. As shown in the research, gentrification is a major factor in the displacement of adults above the age of 50. We need to ensure that services like Settlement Houses and Naturally Occurring Retirement Communities are fully funded and expanded to continue to serve our seniors. Thank you to AARP, the Hispanic Federation, NAACP, Urban League, and the Asian American Federation, for undergoing this detailed project and presenting it to us to deepen our understanding of the needs in our community.”

The top findings of Disrupt Disparities 2.0 by area are as follows:

Gentrification:

  • With rent increases a primary factor in residential displacement, White older adults are the only group whose share of renters in gentrifying New York City neighborhoods is below the citywide rate of 65 percent.
  • In New York City’s gentrifying Hamilton Heights, Central Harlem, East Harlem and Crown Heights neighborhoods, older Whites have median annual household incomes about $100,000 higher than older African American/Black (AA/B) or older Hispanic/Latinos (H/L).
  • Half of all properties seized recently by New York City for outstanding taxes owed are in 10 of the 11 city neighborhoods defined as gentrifying, indicating financial hardship for homeowners and landlords – with similar implications for renters.

In response, AARP and its partners are urging the state to:

  • Enact a statewide law modeled on New York City’s “Right to Counsel” law to guarantee legal representation in court to more tenants facing unwarranted evictions.
  • Expand inclusionary zoning, property tax exemptions and Community Land Trusts (CLTs), including a first right of refusal to CLTs in the sale of publicly owned land in New York City.
  • Fund the 2007 Community Development Financial Institutions (CDFI) Fund to invest in low- and moderate-income neighborhoods not adequately served by mainstream banks. Governor Andrew Cuomo recently proposed $25 million for CDFIs over five years.
  • Preserve and expand limited equity co-ops to encourage affordable homeownership.

Prescription drug costs:

  • 41 percent of AA/B and 32 percent of H/L did without medication over a recent 12-month period due to cost, compared to just 23% of the overall population nationally.
  • 20.4 percent of AA/B and 23.6 percent of H/L did not fill their diabetes prescriptions due to cost, compared with 14.4 percent for Whites,following a 300% spike in average insulin prices from 2002 to 2013.

AARP is recommending a comprehensive state package that includes safe importation of lower-cost drugs, a crackdown on price gouging, exposure of “pay for delay” deals where brand name drug makers pay generic makers to delay consumer access to cheaper alternatives, and expanding the state’s Elderly Pharmaceutical Insurance Coverage program (EPIC), which subsidizes prescription co-pays for older low-income New Yorkers.

Governor Andrew Cuomo has included key prescription drug cost proposals in his 2020 agenda, and key legislation has been introduced in Albany.

Family caregiving:

  • H/L family caregivers spend 44 percent of their income on average and AA/B family caregivers 34% for caregiving costs such as supplies, aides and home modifications, vs. 14 percent of income by Whites.
  • Nearly 40 percent of H/L begin caregiving before age 35, while fewer than 20 percent of Whites do, resulting in more stress at the workplace and reduced future retirement earnings.
  • 38 percent of H/L caregivers and 34 percent of both AA/B and Asian American/Pacific Islander (AAPI) caregivers are in the “sandwich generation,” caring for both their children and their parents, vs. 24 percent of Whites. 

AARP is urging the state to enact a caregiver tax credit to provide family caregivers some financial relief by allowing them to claim as much as half the total they spend on caregiving. AARP is also pushing for a $13.5 million increase this year in state funding for home-delivered meals, which provide support and respite for family caregivers.

Asian American data:

  • New York’s AAPI population, particularly its many subgroups, are too small to be captured reliably in survey data, and expensive and difficult to reach with eight of 10 not speaking English at home and half having limited English proficiency. That has resulted in a dearth of data on which to base sound policy.

AARP and the Asian American Federation urge increased use of internet-based panel surveys, where a random sample of people are recruited to complete surveys over time. That could lead to more detailed study of the community and the cost could be amortized across multiple surveys to drive down expenses.

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